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"Someone has to be the first person to live with ALS rather than die from it, and one thing I've always known about Chris is that he finds a way. No matter the obstacle, no matter how unprecedented the situation may be -- he always, always finds a way." - Kelsie Snow

 

Chris Snow, Assistant General Manager of the Calgary Flames, was diagnosed with ALS in June 2019. The most tangible way you can help us is by donating to research. ALS is a rare disease, and rare diseases aren't easily cured. Fewer than 20,000 people in North America are estimated to be living with ALS. Of them only 2,000 are living with familial ALS, the kind caused by a gene passed down within a family. And yet this has torn through Chris' family. We have lost Chris' dad, both of Chris' paternal uncles and his 28-year-old cousin to this disease. We know that our hockey family will want to help, and we appreciate that so much.

 

Here's how you can do that:

 

Donate to the Calgary Flames Foundation to directly fund ALS research and new treatments at the most progressive institutes, including Sunnybrook Brain Sciences Centre in Toronto.

Chris visited Sunnybrook 13 times over a nine-month period to participate in a clinical trial under the supervision of Dr. Lorne Zinman, the founder and first chair of the ALS Research Network. As of May 1 Chris is participating in the same gene therapy study at the University of Calgary under the leadership of Dr. Lawrence Korngut, the longtime chair of the Canadian Neuromuscular Diseases Network. The drug Chris receives every four weeks targets the specific genetic mutation that has devastated Chris' family. Research dollars produced this treatment, and research dollars will accelerate a cure.

DONATE

 

Donate to the University of Miami's Miller School of Medicine to directly fund ALS research and new treatments.

Chris and Chris' dad were diagnosed in Miami by Dr. Michael Benatar. Chris will go to Miami yearly for life to continue to be studied. Chris and his dad chose Miami because since 2014 Dr. Benatar has led the Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) Consortium, an international group dedicated to identifying early markers of ALS and a cure. The more funding Dr. Benatar receives, the faster he and his staff can work.

DONATE

 

Complete a #TrickShot4Snowy (Click for Details)

 

TOTAL RAISED: $205,950

As of Nov. 4, 2020

To read more about Chris and his family's journey his wife Kelsie's blog can be found here: https://kelsiesnowwrites.com

SNOW ON BATTLE AGAINST ALS

Flames assistant GM drawing more attention to disease

  • Nov 25, 2020 • 04:08

#SNOWYSTRONG - BLUE JACKETS

Jackets with message of support for Snow

  • Nov 25, 2020 • 00:14

#SNOWYSTRONG - LUKE GLENDENING

Red Wings centre with message of support for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:07

#SNOWYSTRONG - EKMAN-LARSSON

Arizona's Oliver Ekman-Larsson with message of support for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:08

#SNOWYSTRONG - THE PREDATORS

Pred send support to Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:39

#SNOWYSTRONG - SEGUIN & BENN

Stars forwards with message of support for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:35

#SNOWYSTRONG - AUSTON MATTHEWS

Matthews with message of support for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:06

#SNOWYSTRONG - CALE MAKAR

Calgary boy Makar with message of support for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:12

#SNOWYSTRONG - PAUL BYRON

Paul Byron with message of support, on behalf of the Canadiens, for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:14

#SNOWYSTRONG - MIKKO KOIVU

Mikko Koivu with message of support, on behalf of the Wild, for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:19

#SNOWYSTRONG - TROY STECHER

Troy Stecher with message of support, on behalf of the Canucks, for Flames assistant GM Chris Snow

  • Nov 25, 2020 • 00:08

#SNOWYSTRONG - ZDENO CHARA

Bruins captain Zdeno Chara with message of support for Flames assistant GM Chris Snow, who's battling ALS

  • Nov 25, 2020 • 00:13

#SNOWYSTRONG - BRADY TKACHUK

Brad Tkachuk with message of support for Flames assistant GM Chris Snow, who's battling ALS

  • Nov 25, 2020 • 00:07