"Someone has to be the first person to live with ALS rather than die from it, and one thing I've always known about Chris is that he finds a way. No matter the obstacle, no matter how unprecedented the situation may be -- he always, always finds a way." - Kelsie Snow

Chris Snow, Assistant General Manager of the Calgary Flames, was diagnosed with ALS in June 2019. The most tangible way you can help us is by donating to research. ALS is a rare disease, and rare diseases aren't easily cured. Fewer than 20,000 people in North America are estimated to be living with ALS. Of them only 2,000 are living with familial ALS, the kind caused by a gene passed down within a family. Chris' dad, both of Chris' paternal uncles and his 28-year-old cousin have died of this disease. We know that our hockey family will want to help, and we appreciate that so much.

Here's how you can do that:

Donate to the Calgary Flames Foundation to directly fund ALS research and new treatments at the most progressive institutes across Canada:

Since July 2019, Chris has been participating in a clinical trial that we wholeheartedly believe is the reason he is still alive today. The drug, which targets the specific genetic mutation that has devastated Chris' family and resulted in the deaths of his dad and uncles within 9 months of diagnosis and his cousin within 18 months, is delivered by spinal injection every four weeks. Research dollars produced this treatment, and research dollars will accelerate a cure.

Donate to the University of Miami's Miller School of Medicine to directly fund ALS research and new treatments

Chris and Chris' dad were diagnosed in Miami by Dr. Michael Benatar, who decades ago founded North America's first and longest-running familial ALS research study. Recently, the study produced the discovery of a neurofilament that can be used to predict onset of symptoms for those with the genetic mutation that runs in Chris' family. That discovery led to the first-ever clinical trial using the medicine Chris gets but on asymptomatic carriers of the same gene. This ability to treat the disease before any symptom presents could prove life altering for future generations of our family. The more funding Dr. Benatar receives, the faster he and his staff can work.

TOTAL RAISED: $557,953.00!

As of May 18, 2023

To read more about Chris and his family's journey his wife Kelsie's blog can be found here: https://kelsiesnowwrites.com