Hope you’re all enjoying your summer!
Jennifer and Matt Pope are continuing our work with the Hydrocephalus Association (HA) to organize the 2nd annual Greater Los Angeles WALK on Saturday, September 13, at the Hollywood Riviera in Redondo Beach. HA is a non-profit organization that provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. Jennifer is the Director of Community Relations and Kings Care Foundation.
As you may know, our soon to be 2 year old son Charlie, along with 1 million others like him in the U.S., lives with hydrocephalus – a chronic neurological condition caused by excess fluid in the brain for which there is NO CURE. The only treatment is brain surgery, most often to implant a medical device called a shunt that allows for proper drainage of fluid and remains in the brain for life. Charlie had a shunt inserted when he was 6 months old and has since had two additional corrective procedures to eliminate brain swelling, which is not unusual. Shunt implants have a 50% failure rate in the first two years and it is not uncommon for patients to have dozens of brain surgeries in their lifetime.
Today, Charlie is a healthy and happy little guy and we are so fortunate to see him grow and develop every day (see attached). Unfortunately, we know most families aren’t so lucky and the reality is that Charlie will likely need more surgeries down the road. We need your help to raise awareness and funds for HA by WALKing with us. Last year, we were blown away by your generosity in what turned out to be the most attended and successful HA WALK in the country in just its first year! This year, with the help of the LA Kings and our Corporate Sponsors, we’re hoping to build on that momentum and create a groundswell of support in order to get the federal funding we need and deserve to find a cure for hydrocephalus.
Here is a clip from last year’s event:
To register for Team Charlie’s Angels, please go to the following link
and click “Join Team” in the top right corner:
Once you sign up, you will be prompted to share it with others through social media. Please invite your friends and family to pledge you for the WALK and/or join the team as well – it’s a fun day at the beach for the whole family and we hope to see you there!
Thank you as always!