Boston, MA – The Boston Bruins Foundation has pledged a $45,000 grant to FRAXA Research, a nonprofit organization supporting scientific research for treating and ultimately curing Fragile X syndrome, for 2015 and another $45,000 grant for 2016. The $90,000 total donation is one of the largest donations in FRAXA’s 21-year history. The award will enable the organization to fund an entirely new research project aimed at developing new treatments for Fragile X.
Bruins alumni and current Bruins Foundation Executive Director Bob Sweeney will present the initial check to FRAXA Founders Michael Tranfaglia and Katie Clapp at 11:45 AM on Thursday, May 28 at the Shared Living Collaborative’s Gateway Farm in Merrimac, MA (43 Highland Rd., Merrimac, MA 01860). Area children and families impacted by Fragile X syndrome, autism and related disabilities will be invited to the event. After the check presentation, Sweeney and other attendees will participate in a tour of the Shared Living Collaborative, which features an extraordinary farm and equestrian-based program that serves children and adults with Fragile X, autism and many other disabilities.
About the FRAXA Research Foundation
FRAXA is a 501(c)(3) nonprofit founded in 1994 by three parents of children with Fragile X to support scientific research aimed at finding a treatment and a cure for Fragile X. The organization accelerates progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research. Along with direct research funding, FRAXA runs scientific meetings, advises pharmaceutical companies large and small, and provides education on college campuses, community settings, and international conferences. Families can reach out to FRAXA and receive educational materials, resources, guidance, referrals, and an international community of support. For more on FRAXA, please visit fraxa.org and follow the organization on Facebook and Twitter.